Before i get into the details of the situation, i would like to admit that i am on my all fours in awe of the baby's mother who faced EVERYONE with a smile despite her hardship of dealing with the situation. I have only had a similar situation when my son was hospitalized for fever and vomiting, that was only but 1 night. She had already endured long nights and not enough sleep for over 5 months but she was able to separate work and her feelings almost entirely. How she was able to handle everything was beyond what my best efforts times 2 would fair.
Baby Kai Xin was diagnosed with biliary atresia when she was just 1 month old. To a normal person, jaundice is quite a norm in babies nowadays and the common treatment would be to expose the baby to light sunlight ie morning rays around 8-9am. However, for Kai Xin, this is the reverse and it would be fatal. After discovering this abnormality, she underwent a procedure called Kasai Procedure in hope that it is not as serious as it could turn out to be. Sadly though, despite the procedure, there was no improvement and the worse became reality when a leading professor (THE person to seek for biliary atresia in Malaysia) tried treating her but now, the enivitable have come true. The baby MUST undergo surgery for a liver transplant.
The ONLY liver transplant hospital in Malaysia is Selayang Hospital. The minimum requirement for this surgery to be done is that the patient should be above at least 10kg in weight. Baby Kai Xin's weight fluctuates between 6.2kg to 7kg due to water retention and difficulty in digesting milk. For comparison's sake, my son weighed 10kg when he was 2 years old (Kai Xin is just 6 months now). Due to its liver failure, the baby's stomach is almost always bloated and she is resisting to drink milk up to her supposed portion. If she does not gain enough weight then she will not be able to perform the surgery :(
The alternative to Selayang Hospital is National University Hospital (NUH) in Singapore where the minimum requirement is just 8kg. The professor have written a letter of recommendation for the mother to try to get financial help from the company to help pay for the surgery whereby the surgery + 1 month stay would amount to SGD150k. As stated, this is only the surgery bill, there are many many other tests which costs SGD20-30k and up which have to be done before surgery is to proceed. If there are complications then that would be another sum and depending on length of stay, it could be another 20-30k and up.
The company's medical is only willing to help with RM30k, much to the surprise or rather UTTER DISAPPOINTMENT of everyone, especially myself. I have personally gone to pull strings with the HR people whom i know to try to help but to no avail it seems :(( The shocking thing is that her grade was supposed to qualify her to unlimited medical finances, so it seems that its just a big bunch of bullcrap.
Point to be noted that better help would come if help were to be seeked from organizations like the MCA or newspapers but in the parents' view, there are other families which are much poorer than them who do not have any other avenues but to seek help from newspapers or MCA or the like. With respect to that and our own initiative, we have started our own fund raising and the person who donated, contributed RM1k. I do not have that much to spare and was only able to contribute RM100 :(
We will run our own fund raising campaign for her to try to help out as much as possible. IF we are able to secure an account where funds can be donated into and IF you guys are willing to contribute then leave your contact with me and i will get back to you when that account becomes available. Suggestions are also welcomed :)
KL Library ... the coolest place to be in town
6 months ago

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